I'm Still Alive

And I'm truly proud of myself. I am sorry that I haven't kept everyone updated with this blog in a while. It's just that with the last few doctor appointments to the Pulmonary Hypertension Clinic, I've been getting sick with a migraine while there. I end up throwing up in the car all the way home. It's the stress of going that's reaking havoc on my body. The doctor schedules either an ECG, 6-minute walk and then comes the doctor appointment after that. Each test requires a long walk down the halls of the hospital to get to the testing area. It's come to a point where my husband and I have decided to use a hospital wheelchair while there. It sucks. I tended to tell myself that I needed the excersize of the walking but since I keep getting sick, I have to re-evaluate my way of thinking. Pride has no place when it comes to doing my body damage. I can take a few dents in my pride where health precautionary is concerned.

Lately, I've been getting behind on my medical records and account statements. What a pain in the butt that is. Every since Medicare has changed their billing system, life seems a bit screwy. So, I'm thinking about looking around for a personal program for organizing medical records. I'd like to save it all on a thumb drive and then add that drive to my key chain or something of that nature. I could even add an Advance Directive as its own separate folder on the drive. What hospital doesn't have a USB port to plug that thing in and look over my records if I have no way of speaking with them or if I can't recall something? I'm wondering if there are any privacy issues involved. Anyone know? Contact me.

As for the Tracleer... I'll be having another Heart Catherization sometime this Spring (May 2008, I think). At that time, it will be determined how good of a job Tracleer is still doing. Will I have to go on additional medication? I sure hope NOT!

I am so glad that tracleer has been so far working for you. I have had it for four years now. It has been hard but keep up your faith, time will help everyone.

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Thank you so much for the well-wishes. I've been truly lucky that the Tracleer has had no ill-effect on my liver but the monthly blood test is starting to grow tedious. My arms are getting scar tissue where they insert the needle. They can only use my left arm because for some reason my right one doesn't flow fast enough. I find that VERY odd. Don't you?

Good to hear from you again. Stay strong and healthy. *HUG*

-Christine

Hi,
I have read your blog & happened on it when looking up scoliosis info. I believe I read you have scoliosis too?
I had surgery in 2006 for a 95 degree lower curve & doing well now. all my best to you, Lynne

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Thank you Lynne. I'm glad to hear that you are doing well after your surgery. I'd be curious to know how surgery has improved your life.

Christine

Just passing thru and thought I would say Hi...