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Saturday, May 17th 2008

6:41 PM

Oxygen Update

  • Tracleer Update: Still taking it. Labs still look good!

First I would like to thank all the many visitors to my blog.  I appreciate the interest you have about Respiratory Insufficiency, Pulmonary Hypertension, Cardiac problems & Scoliosis -- all of which I try to cover in this blog.

My last appointment, on April 18th, went well. The staff asked if I would take part in a study. Researchers would study whether or not Pulmonary Hypertension is a genetic disease. I participated but I told them up front that I've already had a genetics test in the past to rule that out and it came out negative. My parents were worried that my little sister would have babies who would turn out which children with my disabilities. Of course, we were all relieved.

I'm still having the problem with the lack of motivation. I still don't know why or whether or not it's a mysterious side affect of Tracleer. I have to push myself everyday to get my butt in gear to do the basic things... even taking a shower and washing dishes. It is so frustrating. I tried the medication Cymbalta but I don't take extend release medication very well and it made my brain feel like extremely wired all day long. That's just from taking only one pill. I think I'm done taking antidepressants.

June 27th is the date of my next Heart Cath. Let me tell you that I'm so totally thrilled. (that was sarcasm). I'll try to keep you updated a bit better than I have been lately.

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