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Wednesday, September 3rd 2008

5:24 PM

Livinono2forlife Messageboard

  • Tracleer Update: Erg.. I bailed on my blood test today. I'll go tomorrow. I swear!!

It's new! It's fabulous! But, there's not much there yet. It's the new LivingOnO2forLife messageboard. I've found that with this blog, it's hard for those who post questions / comments to find my replies. With the messageboard, I'm encouraging you to post your questions and helpful experiences there.

http://pub34.bravenet.com/forum/2855880451/

The whole purpose of the LivingOnO2forLife Blog is to help others who are in a similar situation as myself. When I first learned I had to be on Oxygen 24/7, I was in denial at first and then I got mad at life. Of course, then I was overwhelmed and confused about how I was going to live a good life while attached to a 50ft canula. It took me some time to figure out how Durable Medical Companies work and how to get what I need... not just what they wanted to give me to use. It all starts with your doctors (Pulmonologist & Primary Care Physician). Communication with the pulmonary doctor is the key. You have to take an active role in your health care. Your pulmonologist prescribes the oxygen or bipap for you. If you are having trouble with adapting to it, tell the doctor. Don't just stop using it and give up.

Remember, this is YOUR life and YOU have a say in YOUR health care. But that doesn't mean giving up when things are tough. Hang in there and talk to the Pulmonologist and then relay all that information back to your Primary Care Physician.

This is my opinion. It's how I lead my life.

1 Comment(s).

Posted by anu:

u have a strong will power i guess.....
aarogya.com

******

Thank you for visiting. I briefly visited your website. When I get a little more time, I'll check it out again. I didn't see any pulmonary information. Do you plan on adding that to your site? =o) Have a great day.
Saturday, September 13th 2008 @ 3:47 AM

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