Let me say that I apologize for such a delay in posting a new update on this blog. Life has been very busy for me with a multitude of doctor appointments and a family funeral. Everything has settled down now so that I can post away as usual!

First let me say that Tracleer (I believe) has made an impact on my red & white blood cells, hematicrit, hemoglobin, iron and ferritin. All of them were low each time I had my monthly labs to check my liver which is REQUIRED. At first, the doctors thought that maybe I was bleeding somehow internally but I knew that wasn't the case and prooved that it wasn't by providing a stool sample. *gross* =o)

The only way that the doctors realized that my iron and ferritin was low was because my sister asked me to ask my doctors to do an iron study labwork. I was feeling so unmotivated to do anything and I'm not saying that it's vastly improved. But it's helped now that I'm taking iron supplements that I buy over-the-counter instead of getting the prescription kind. My doctor said the OTC iron would be fine to take. In just one months time, my iron & ferritin (which is the how the body stores its back up supply of iron) went right back to within normal range.

Unfortunately, I couldn't talk my doctor out of having another Heart Catherization in October. I had an A.B.G done last month and found my CO2 is 71.9 on 5L of O2. That was really depressing. Plus, it means that Vegas is out for my roadtrip but I'm still going and I'm so very excited!! So, I also had a Sleep Study to retitrate my bipap which is another story all together.. better saved for another posting. =o) Let me just say that I was not pleased at what they DIDN'T do during the study that I thought they should have.

I hope everyone is having a pleasant summer and staying out of the heat.

Sorry for your loss. I emailed you a few times and you helped me with information on liquid oxygen. I changed to to a regular concentrator. I also had a right heart catherization done and mine is 60 on 3L of O2 but they are puzzled on the right side on the pressure being high, so I go for consultation on 7-24. I am also on tricleer and had to take iron pills also. Good luck to you again I would like to stay in touch.

Currious if you changed suppliers and what kind of equipment are you using, liquid oxygen or oxygen concentrators. Thanks jim

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I changed to Lincare for my vacation and I'm still using all Liquid oxygen. ---christine